NeMO Clinical Center Milan was inaugurated in 2008 and is the first location of the NeMO network, it is the reference point for research and care of children and adults.
The Clinical and Scientific Direction is entrusted to Prof. Valeria Sansone, Full Professor of Neurology at the University of Milan, who employs a clinical and research team of 65 professionals.
Since 2017, the “Nanni Anselmi” Clinical Research Center has been active in the structure, dedicated to clinical research on neuromuscular diseases.
In the NeMO Clinical Center Milan there are Neurology, Neurology of the Developmental Age, Pneumology, Physiatry, Neurology for taking charge, Psychology and Neuropsychology ambulatories. In the Center we take care of patients with:
At NeMO Clinical Center Milan we offer different health services for our patients:
All NeMO Centers are active in the field of clinical research, conducting numerous studies, most of which are networked with other NeMO Centers and / or with the national and international clinical community: to make this network activity more efficient, at the Clinical Centers of Milan and Rome, there are clinical units dedicated to research, that support the management and coordination of clinical trials in which the two centers are involved.
Alongside clinical research there’s NEMOLAB, a technological hub dedicated to projects that aim to find solutions to improve the autonomy of children and adults with neuromuscular disease.
Active since 2017, it represents a national and international reference point for research in the field of neuromuscular diseases. The activity carried out within this area favors the implementation of protocols and procedures for the conduct of multicenter clinical trials, in adults and children, in synergy with the other locations of the NeMO Center.
The NeMO Clinical Center Milan is the Presidium of Rare Diseases of the Lombardia Region and is the ERN Center (European Reference Network) for neuromuscular diseases.
It is part of the most important national and international research networks in Myotonic Dystrophies, Facioscapulohumeral Dystrophy, SMA and DMD and is the coordinating center of the National ALS Registry.
It is the only European center of the Neuromuscular Study Group, a neuromuscular study group mainly focused on collaborative networks and clinical trials, coordinated by the University of Kansas and the University of London, Queen Square. For 3 years it was also part of the Executive Board.
It is recognized by AIM (Italian Myology Association) and it is a reference for associations of patients with neuromuscular disease and NeMO members. It works in close collaboration with the regional territorial network.
The NeMO Clinical Center Milan is also a Neurorehabilitation Unit of the University of Milan, Department of Biomedical Sciences for Health, and has an agreement for teaching activities with:
Valeria Sansone is a neurologist. She is a full professor at the University of Milan, and since 2013, she has been the clinical-scientific director of NeMO Clinical Center Milan and "Nanni Anselmi" Clinical Research Center.
Since 1991, she has been dedicated to clinical research on neuromuscular diseases, particularly myotonic dystrophies and skeletal channelopathies. Her primary areas of clinical research focus on developing clinical-diagnostic protocols for muscular channelopathies and the development of clinical-diagnostic protocols for neuromuscular, cardiac, endocrine, and central nervous system aspects of myotonic dystrophies.
Her research activities have taken her abroad, first to Germany (Gottingen and Munich, Max Planck Institute, studying cellular physiology techniques) and then to the United States in 1997, at the Neuromuscular Unit of the Department of Neurology at the University of Rochester, NY, at the General Clinical Research Center of Strong Memorial Hospital. In the same year, she was the recipient of one of the three awards for the best scientific contribution at the American Association of Neurology in Miami, focusing on a rare form of skeletal channelopathy associated with skeletal-facial dysmorphism and cardiac arrhythmias, known as Andersen-Tawil syndrome, of which she studied one of the most extensive cases.
Today, she is nationally and internationally recognized as one of the leading experts in neuromuscular diseases, with a particular focus on myotonic dystrophies, facioscapulohumeral muscular dystrophy, spinal muscular atrophy, and dystrophinopathies such as Duchenne and Becker muscular dystrophy.
